Standing outside the Today Show in New York with a photo of Eric completing one of his bucket list items at the end of summer 2012. Eric was too sick to make it out this morning, but I'm holding this photo up high for him. He IS the face of HLH & Still's Disease.
I have wanted to start a blog for quite some time now. TIME is the hardest thing to find these days. I currently hold a full time position in Philadelphia, PA and I live in New Jersey with my husband Eric, 2 dogs Bella & Buttercup, and cat Tiger. My average day starts off with hitting the snooze at 5am, finding the energy to get out of bed, taking the dogs out, feeding them, getting ready for work, letting the dogs out again, grabbing something on the go before braving the great commute into Philadelphia. An 8.5 hour work day plus commute typically turns into an 11.5 or 12 hour day. Not horrible, but it doesn't really leave a whole lot of time to get much else done come the evening. By the time the mail is brought in and checked through, the dogs are let out, played with and fed, and dinner is under way - it's about 3 hours before I should be going to bed. The little free time that's left during the week is usually spent hanging out with eric and the dogs and catching up on any messages recieved on the website or social media sites. And jeeze, there must be time to fit a shower in there. Now, for working moms, i'm sure that seems like eternity for the amount of free time you must get - but honestly, it's why we don;t have kids yet. We're young, just celebrated 3 years in our house this June, and more than 50% of the time here, eric hasn't beenn. When he was healthy he traveled to disasters around the country and last year spent 99 days int he hospital, most of which he was medically sedated and paralyzed for. So the 'free' time you'd assume I have is spent focusing on eric's medical conditions and trying to figure out where all my energy has gone. After doing some much needed self reflection, Eric & I realised we don't nearly exercise as much as we should. We do exercis-ey type things around our house since we live out in the 'country', but dedicated time is needed. recently we started biking and though I feel as if my thighs have turned into jello and i can't quite feel my ankles - the day after I feel so REFRESHED! So now i'm working on limiting my time spent in the digital world and trying to organize the house a bit better. starting a blog is probly NOT reccomended considering how I already manage Eric's website, and assist with the social media sites, and blog. But it is what it is and there's only 1 way for me to keep up with all of this and that's with my iPhone.
Amanda Majusiak is a GIS Professional who focuses on web design, graphic design, photography and social media integration.
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