So much has been going on the past few weeks that we've hardly had a chance to catch up on some Zzz's let alone blog about it. The collage I posted is just a sneak peak at what we've been up to. We have had some great times with family and friends and a few cases of the 'oh no i hope i'not getting sick - ahhh choo!'
In the upcoming days we will have posts on the following:
While it appears to be a dream package - a lot of hard work, help & support was put forth by our family and friends and we couldn't have done it without them! Eric's parents watched our two dogs while we were away on our honeymoon and we can't thank them enough for that! They even posted pics of our pups to cure our separation anxiety! Anyone who knows us well, knows that our dogs ARE our kids.
I give a huge dose of credit to my husband Eric for fighting through all the pain that Still's Disease causes him every day. A picture may be worth a thousand words, but it's worth 2,000 more that you can't see seconds after the photo is taken. Social media has allowed us to connect with others and share our story so others don't have to feel alone. But times like this where we can catch a glimpse of 'normal' life again can easily be misconstrued to those who don't interact with us on a regular basis.
It takes Eric's body anywhere from 30 minutes or more to get un-stiff in the morning. Sometimes it takes hours or lingers for days. While Humira, Methotraxate and steroids allow Eric to move around and stay alive, one of the major downfalls is the immense pressure to have reduced sun exposure. So0o0o0o there is a lot of prep time for pretty much anything we do now. A typical rundown of any trips or outdoor activities we do consist of making sure Eric has all of his medications with him for the duration(sounds easier than it is), the least amount of sun exposure possible, reducing any risk of insect bites or exposure to bacteria, wearing masks around people who cough or sneeze, ability to rest when weary, and the understanding that sometimes the day just has to end early no matter how much it sucks and you want to keep going.
We knew going into these events that it would take a lot, and I think it took more than we expected. However, I don't know that we could have made it without the help of others. We are eternally grateful for their efforts in giving us the chance to make the memories that HLH almost took from us just 4 months after we wed.
We thank you for your continued support and hope you get to take a moment to enjoy the fall. Life is short. Yesterday is gone & Tomorrow is never promised. Go make time for your loved ones today!
I have wanted to start a blog for quite some time now. TIME is the hardest thing to find these days. I currently hold a full time position in Philadelphia, PA and I live in New Jersey with my husband Eric, 2 dogs Bella & Buttercup, and cat Tiger. My average day starts off with hitting the snooze at 5am, finding the energy to get out of bed, taking the dogs out, feeding them, getting ready for work, letting the dogs out again, grabbing something on the go before braving the great commute into Philadelphia. An 8.5 hour work day plus commute typically turns into an 11.5 or 12 hour day. Not horrible, but it doesn't really leave a whole lot of time to get much else done come the evening. By the time the mail is brought in and checked through, the dogs are let out, played with and fed, and dinner is under way - it's about 3 hours before I should be going to bed. The little free time that's left during the week is usually spent hanging out with eric and the dogs and catching up on any messages recieved on the website or social media sites. And jeeze, there must be time to fit a shower in there. Now, for working moms, i'm sure that seems like eternity for the amount of free time you must get - but honestly, it's why we don;t have kids yet. We're young, just celebrated 3 years in our house this June, and more than 50% of the time here, eric hasn't beenn. When he was healthy he traveled to disasters around the country and last year spent 99 days int he hospital, most of which he was medically sedated and paralyzed for. So the 'free' time you'd assume I have is spent focusing on eric's medical conditions and trying to figure out where all my energy has gone. After doing some much needed self reflection, Eric & I realised we don't nearly exercise as much as we should. We do exercis-ey type things around our house since we live out in the 'country', but dedicated time is needed. recently we started biking and though I feel as if my thighs have turned into jello and i can't quite feel my ankles - the day after I feel so REFRESHED! So now i'm working on limiting my time spent in the digital world and trying to organize the house a bit better. starting a blog is probly NOT reccomended considering how I already manage Eric's website, and assist with the social media sites, and blog. But it is what it is and there's only 1 way for me to keep up with all of this and that's with my iPhone.
Amanda Majusiak is a GIS Professional who focuses on web design, graphic design, photography and social media outreach.
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