Learning about the diagnosis
As sedation was lightened, I began to learn more about my rare diagnosis. I was diagnosed with not 1, but 2 rare diseases; Hemophagocytic Lymphohistiocytosis better known as HLH and Adult Onset Stills Disease (AOSD).
My memory recall was weak and my pulmonologist suggested I start video blogs for my own recall later in the day. I did not have intentions of sharing these then, but in August 2012 when my wife Amanda began building this website, i decided to have her post this video and more on my YouTube channel in hopes of helping others know its okay to be scared and that they too can beat these diseases.
My memory recall was weak and my pulmonologist suggested I start video blogs for my own recall later in the day. I did not have intentions of sharing these then, but in August 2012 when my wife Amanda began building this website, i decided to have her post this video and more on my YouTube channel in hopes of helping others know its okay to be scared and that they too can beat these diseases.
