New Jersey Rare Action Network Rare Disease Day 2023

Eric and his wife Amanda Majusiak attended NJ Rare Disease Day along with RD the Rare Disease Dragon. RD was excited to make his first public appearance with the Rare Action Network. Attendees were able to take information about Eric's Journey Foundation and their programs - along with some super cool RD the Rare Disease Dragon stickers and pins! It was a fun night for all!

This years NJ Rare Disease Day was hosted by NORD Rare Action Network Ambassador Patricia Guerds at the Make-A-Wish Castle, The Samuel & Josephine Plumeri Wishing Place located in Perrineville, NJ.

The goal with the State Resource Fair is to empower patients and families with helpful information, community organizations, and service near where they live to ease their burdens. Often individuals with rare diseases must travel great, costly distances to find care or experts familiar with their condition; very few treatments exist, and it can feel very isolating to have a serious medical condition that most misunderstand. The event will also serve as an opportunity for people to find hope and connect with one another.